Monday, January 31, 2011

Dyslexia Awareness Campaign

Anybody that knows me very well, knows how passionate I am about dyslexia.  One of the things that just drives me crazy is how difficult it seems to be to get a child diagnosed with dyslexia.  In my case and several other cases that I know of, it would not have happened without an all out fight on the part of the parent.  Once I started educating myself about dyslexia, there was no doubt in my mind that my child was dyslexic.  Getting the diagnosis was a whole other battle.  I really think that unless you are dyslexic or live with someone that is dyslexic you don't have a clue about dyslexia.  Obviously our system of higher education in this country is doing a very very poor job of educating our educators about this learning difference.  Everyone seems to be very aware of autism and all of its aspects, but very few really understand dyslexia and all that it involves.  When my daughter Anna was 8 years old I had her tested by a reading specialist from one of the local school districts.  She was given the diagnosis of ADD, nothing was even mentioned about dyslexia.  When Anna was 12 I had her tested again by the diagnostician for the local public school, there again she was only diagnosed with dysgraphia.  By this time I knew enough about dyslexia to know with out a doubt that she was dyslexic.  Through much persistence on my part and lots more testing on Anna, we were finally given an official diagnosis of dyslexia.  The people that were testing Anna acted so surprised that Anna was dyslexic.  They obviously did not know much about dyslexia, Anna is very severely dyslexic.  At the time I did not realize just how rare that diagnosis was.  Since then I have talked to so many parents who have children that are obviously dyslexic, yet they can not seem to get a diagnosis.  I am not sure where to begin, but I realize that there needs to be an all out effort to educate the general public and especially the educators about dyslexia.  It is proven that it is crucial for dyslexia to be diagnosed and treated early (like first or second grade) to prevent emotional and self esteem problems related to it.  So my question is why does it take fighting with the system until the child is 12 or 13 years old before you finally get the diagnosis.  Something desperately needs to change.  I propose an all out dyslexia awareness campaign.  Not sure how that is going to happen but I am ready to start it.   We need some kind of logo like the pink ribbon for breast cancer or puzzle piece for autism.  I am open for ideas....

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